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March 29, 2012

March 30th We Welcome Home Our Vietnam Veterans!

On March 30, 1973, all U.S. troops withdrew from Vietnam.
There were no ticker-tape parades honoring the veterans, no triumphant marches or speeches as there at been at the end of each of the World Wars. America’s Vietnam veterans returned home to silence, or worse, in some cases to denigration for having served their country during a controversial war.

March 30, 2012, has been officially designated “Welcome Home Vietnam Veterans Day.”

The U.S. Senate resolution designating the day as one to provide overdue honor to the members of the armed services was introduced by Senator Richard Burr (R–North Carolina), Ranking Member of the Senate Committee on Veterans Affairs. This is the second consecutive year he has introduced such a resolution.

The text of the announcement of the resolution’s passage appears below.

Washington D.C – The U.S. Senate yesterday declared March 30th as “Welcome Home Vietnam Veterans Day,” agreeing unanimously to a resolution introduced by Senator Richard Burr (R-N.C.), Ranking Member of the Senate Committee on Veterans’ Affairs.

On March 30, 1973, all U.S. troops withdrew from Vietnam under the terms of the Treaty of Paris. This March 30th, the Senate has encouraged Americans across the country to recognize Vietnam veterans for their sacrifice and demonstrate a warm welcome to these soldiers who returned from war to a politically divided country.

“I’m pleased that the Senate has agreed to set aside a day to give our Vietnam veterans a warm, long-overdue welcome home. I strongly encourage communities throughout North Carolina and across the country to observe this day with activities and events that honor these veterans for their service. It’s time they receive the recognition they have earned and deserve. This day also provides our nation with an important teaching moment. Never again should our men and women serving in the armed forces receive the same treatment as those returning from Vietnam,” said Senator Richard Burr.

Senator Burr introduced the resolution for the second consecutive year on February 16, 2011. Click here to read Senator Burr’s remarks on the introduction of the resolution.

The United States became involved in Vietnam because policy-makers believed that if South Vietnam fell to a communist government, communism would spread throughout the rest of Southeast Asia. The US Armed Forces began serving in an advisory role to the South Vietnamese in 1961, and in 1965, ground combat troops were sent into Vietnam. On March 30, 1973, after many years of combat, all US troops withdrew. More than 58,000 members of the United States Armed Forces lost their lives and more than 300,000 were wounded in Vietnam.


Senators John Boozman (R-AR), Thad Cochran (R-MS), James Inhofe (R-OK), and Johnny Isakson (R-GA) and Mike Johanns (R-NE) co-sponsored the legislation. The resolution now moves to the House of Representatives for consideration.

So on March 30, make a special effort to say, “Welcome Home.”


Mattel Will Make A Bald Fashion Doll Friend Of Barbie!

Here is Mattel’s official announcement, as it was published today on their Facebook page:

“Play is vital for children, especially during difficult times. We are pleased to share with our community that next year we will be producing a fashion doll, that will be a friend of Barbie, which will include wigs, hats, scarves and other fashion accessories to provide girls with a traditional fashion play experience. For those girls who choose, the wigs and head coverings can be interchanged or ...completely removed. We will work with our longstanding partner, the Children’s Hospital Association, to donate and distribute the dolls exclusively to children’s hospitals directly reaching girls who are most affected by hair loss. A limited number of dolls and monetary donations will also be made to CureSearch for Children’s Cancer and the National Alopecia Areata Foundation.

Through a thoughtful approach, we made the decision not to sell these dolls at retail stores, but rather get the dolls directly into the hands of children who can most benefit from the unique play experience, demonstrating Mattel’s ongoing commitment to encourage play as a respite for children in the hospital and to bring joy to children who need it most. We appreciate the conversation around this issue, and are interested to hear what you think! It’s been a bumpy path for Mattel navigating this issue in the social media space these last couple of months. They were slow to respond to the public’s appeal, and when they did, they found their answer harshly criticized in the media as being inadequate.

While Mattel quietly surveyed the situation and plotted their strategy, their fiercest competitor took advantage of the opportunity. In February, MGA Entertainment announced they’d debut a line of bald Moxie and bald Bratz dolls they call "True Hope" at ToysRUs in the USA and Canada by mid-June. A portion of MGA’s sales of the new dolls will be donated toCity of Hope, a research, education and treatment center for cancer and other life threatening diseases.

MGA wasn't the first to bring a bald doll to market. Cincinnati's own Kimmie Cares doll has been available online and through childrens' hospitals for a few years now. While Mattel has decided not to sell their dolls at retail stores, the organizers of the original campaign on facebook “Beautiful and Bald Barbie! Let’s see if we can get it made,” are still celebrating a victory.

Photography artist, Jane Bingham, who is one of the original organizers of the effort, posted this statement on the “Beautiful and Bald Barbie – Let’s see if we can get it made” facebook page:


“We are very happy with what Mattel is doing. Yes, we would like to see these bald fashion dolls (a friend of Barbie, name undisclosed yet) on the shelves or online available for purchase but Mattel is doing what it feels best by donating them only. They are also making a financial donation to CureSearch and NAAF. We hope this is one HUGE step in making bald fashion dolls available worldwide for everyone who wants one. If this is as far as Mattel goes, I cannot complain. They are doing this all without making any profit at all. As a mother with cancer and a young daughter, I would like these available to children whose mothers or a loved one has cancer and for any other reason...Trich, progeria, burn victims, etc... There are many causes of baldness in children and women but this is an amazing accomplishment and a wonderful thing for Mattel to do so let's celebrate! Go to Mattel's wall and let them know what a wonderful thing they are doing and encourage them in any direction you hope they continue with this.”

It’s interesting that Mattel chose to announce their decision directly on their Facebook page even before publishing a traditional press release. They chose to make the announcement in the place where they knew the conversation was most relevant – the place where the conversation began – social media.

March 26, 2012

Emma Routh Has A Wish - To Meet Justin Bieber!

Justin, Emma is fighting Fanconi Anemia. She is very sick.
Her dream is to meet you.

Little Emma was diagnosed with Fanconi anemia at the age of 3. Fanconi anemia is a rare bone marrow disease that leads to many cancers and life threatening health problems. So far Emma has stayed cancer free, but this warrior has been through so much. She has had countless rounds of chemotherapy, bone marrow aspirations, a bone marrow transplant, and very long hospital stays. Her battle is not over... please see this link to read her story:  http://www.facebook.com/prayersforemma?sk=info

I would personally like to ask that my readers please take a minute and look at the photo below. This is a screen shot of several HATE comments regarding Emma's wish to meet Justin Bieber. It is unbelievable that anyone would say such horrible things about a little girl who is fighting for her life and has one wish right now and that is to meet a celebrity. That is not unheard of, many children with terminal diseases have wishes to meet a celebrity and they come true every day. There is absolutely no reason why Emma will not get to meet Justin.

 I am sure that if we all stand together and make our voices heard we can get Justin's attention and once he is aware that this sweet little girl want's to meet him so bad, he will make it a priority. So please everyone take a minute and contact Justin Bieber via his website, Facebook Fan Page, even go to his recording company, anywhere you know of that will reach him and tell him about Emma. 

Also the comments below will only make Emma and her supporters work harder to get her to meet Justin. We will not allow anyone to put anything negative on this dream. If you know any of the people in this photo of comments please go to there Facebook pages and tell them how absolutely disrespectful and hateful the comments they made where and be sure to let them know it will not be tolerated or forgotten. They need to be exposed as the haters they are so they can not do this to anyone else. Thank you for your support and caring for Emma's wish and for helping to get her voice heard.

Comments like these about Emma give us all the more reason to try harder to help our girl. These people made the comments in order to put us down and tell emma she will never meet justin and she is bald and ugly. Little do they know we took the comments and all it did was make us try even harder for Emma. We will not let haters change our mission. We are a determined, strong group of people....all with a common goal. To see our (our meaning all of ours, she is your's too!) girl happy. Thank you for continuing along this journey with us, and helping us see the haters make us even stronger!


I know the photo is small, please try right clicking on it and opening it in a new tab - there you should be able to see the names clearly.

You can read more about Emma at the CaringBridge.com

March 20, 2012

Please Help Gina Buonfiglio's Cancer Fund Today!

Gina has Endometrial Carcinoma a rare Cancer with no cure.

Gina's cancer fund will aid in the medical expenses that are not covered. Please show your support and help her fight her battle!

Here are some words from Gina...

I believe: Everything happens for a reason, without clarity, but for a purpose yet unseen! 

About Me: Cancer survivior, lived many lifetimes and now settling down into the one I have been searching for! Fought for domestic violence laws to be changed as well as the spreading education on Endometriosis. At age 36 I had a hysterectomy, which changed my life forever. I have a fantastic fiance with a 8 yr old daughter whom stole my heart. I am so loved I only want for the people who love me to know just how special they are to me.

Gina's battle today: What began as Endometriosis that had been undiagnosed for so long causing it to turn into Cancer. At age 39 and single, she was given five years to live and that was nearly six years ago. Gina is struggling, she is on social security and can not work as a medical massage therapist any longer, only making $700.00 a month. 

Her medication runs over a $1,000.00 a month, insurance will not cover many of them as well as not covering her doctor's appointments, and Medicaid is not an option. She is forced to go with out food or be late on basic bills every month. Gina is always helping others yet has never asked for help herself. Her Cancer is also know as Uterine Cancer. She has never married and doesn't have children of her own. She lives in the mountains and has to depend on medical transportation and neighbors to help drive her to her appointments. The American Cancer Society volunteers can help but they are limited due to the fact that she lives in a rural area. She needs help paying for medications so she can have money to eat and pay her bills without the stress of not having anything else. There are two great doctors in NYC that she would like to see and they are highly recommended by the Foundation of American Cancer Society, and wants to raise the money to seek the care she needs to have a functional life. Gina is a proud person who will not ask for help. She spends her time trying to form a foundation to help find a cure, while managing a support group where her free time is spent helping others cope with Endometriosis and those who are caregivers. She hopes to form a non profit organization to find a cure for future girls so they will never suffer the way she does today. Her wish is to spread the word and have her voice heard to educate other on the fact that this disease can be deadly despite what doctors say. She is proof that Endometriosis can turn into Cancer, not only that but it is linked to several other Cancers as well as Lupus. She fights for her life in pain all the time and can not afford to get medications that will ease her pain and nausea which is why we are trying to raise a few thousand dollars and help relieve the stress of everyday life and be able to cope with Cancer. Gina is strong and can beat this with the help and support of others. She is in need of help with the funding of her treatments, doctor's appointments, medications and transportation. Gina has been advocating for this cause and related ones for years and has helped so many by raising awareness, please give back to her and donate toward her Cancer Fund.
For more information and ways you can donate please see Gina's fund page at: http://www.giveforward.com/ginascancerfund 

To get to know Gina and the causes as well as support groups she advocates for please visit her at:

March 16, 2012

I Support The Beautiful & Bald "Unforgettable Barbie" !

The Beautiful & Bald Barbie is in the news today!

The Facebook Community page Beautiful & Bald Barbie let's see if we can get her made was insulted today by a blogger on a highly visited website. I completely support the making of Bald & Beautiful Barbie and that is why I feel I need to post this tonight.

The author of the insulting post is not taking responsibility for her writings and that in itself is even more insulting. I am going to add the links to the post and blog as well as the Facebook Community page along with some of the comments for you to read for yourself. 

As a blogger I am offended by the author as well, she does not hold up the integrity and ethics of blogging which is a responsibility we bloggers assume when we choose to post about certain, serious topics such as Cancer and Chronic Illness.

I would personally like to apologize on behalf of the bloggers who do take the time to research the facts and post responsibly as well as morally and ethically correct blog postings.


Beautiful & Bald Barbie Facebook Community:
http://www.facebook.com/BeautifulandBaldBarbie

Update on the "10 Craziest Barbies Ever" blog article on Baby Center...the writer changed the title to "10 Barbies You Will Never Forget" and posted this at the end of the article..." I just wanted to say that I in no way meant to offend anybody with this post’s previous title. When I said “crazy,” I meant it as meaning the dolls were unique and out of the ordinary. I have a niece who suffers from alopecia, I would never want to exclude her from having a doll made that looks like her. I’ve removed the “crazy” from the post."

Unfortunately she seems too proud to actually apologize nor does she correct the implication that a Beautiful and Bald Barbie is the only one listed that is only a concept and not an actual marketed and produced Barbie. Unforgettable? I sure hope that is true IF Barbie really makes her. Let's hope she WILL BECOME an "unforgettable Barbie" in reality. ~ Jane


I just wanted to say that I in no way meant to offend anybody with this post’s previous title. When I said “crazy,” I meant it as meaning the dolls were unique and out of the ordinary. I have a niece who suffers from alopecia, I would never want to exclude her from having a doll made that looks like her. I’ve removed the “crazy” from the post.

If you would like more information on how you can support those families battling cancer or disabilities, please see these groups in BabyCenter’s community:

Childhood Cancer Support
Survivor Mommies
Moms With Breast Cancer
Breast Cancer Awareness
Children With Disabilities
Children With Cerebral Palsy
Children and Babies With Global Developmental Delay

Thanks for reading. Denise


Denise Cortes says:
March 16, 2012 at 6:15 pm

When I first saw the comments pouring in, my response was wow, chill out guys. I was confused as to why there would be such a backlash about a slideshow about *10 of the craziest Barbie dolls ever* when I never said a bald Barbie was ridiculous or sad or weird or wrong. Or made! I know the backstory. Yes, poor choice or words, I’ll admit. But I truly meant crazy as in out of the ordinary and different. I did not mean to slam the concept at all. I feel bad that people think I am some a-hole who has a problem with cancer survivors and/or handicapped people, which couldn’t be further from the truth. I can understand a person’s passion on the subject, but honestly, I didn’t mean to work everyone up.

Well, I had to voice my opinion as well and leave a comment for the author which I did over an hour ago and they are still waiting for approval to be published on the blogs comments with the previous 184 comments today.

Angie says:
Your comment is awaiting moderation.

March 16, 2012 at 10:01 pm

As a blogger I can say if you were going for hits on your post and/or blog, you got them! Unfortunately you got only negative hits and obviously they will not be returning to your blog, so congrats on your spike for today but plan on seeing it drop seriously within days if not hours.

How could you have gotten such an important fact WRONG? If you honestly believed what you were writing about than you need to rethink your hobby. The blogging world is not a game and it is people like you that make a bad name for the rest of us.

Bloggers are powerful tools for causes that need the power of the internet to raise awareness for their cause to help bring in funding and support that is much needed to find the cure for their cause.

What you posted today was not only ignorant on your part but could have caused some serious set backs on the negotiations for the production of the Bald and Beautiful Barbie but also may have confused some readers who do not have access to all the information.

I am sorry if I am being rude to you but you have a responsibility to your readers and other bloggers to blog facts and truth especially if you are discussing such serious topics as this.

I would suggest you write a new posting and fix what you have done, I am not going to tell you exactly what that will involve because I think you need to figure that out so at least you can learn something from this and prevent such stupid postings in the future!

Angie says:
Your comment is awaiting moderation.

March 16, 2012 at 10:22 pm

Well I guess I spoke too soon, I actually did not expect you to comment on your own blog post so I did not read every single one. As I was looking over them again I came across your comment as quoted below.

All I can say is I am shocked that you would post what you blogged today, but your comment is completely out of line. You act as if you are the victim here. You are not capable of feeling what the people who commented are feeling.

You need to seriously think before you blog, your vocabulary needs some fine tuning as well as your manors. You should be begging for forgiveness but instead you are insulting even more.

Consider stepping down as a blogger, you represent a huge organization and if you are a responsible person you will do them the favor of leaving.

I do hope that this does not interfere with the talks between Mattel and the Facebook Community and the barbie is produced very soon. I posted this tonight to sum up today's events and maybe it will help in some way even if it just clears up some of the confusion. Thank you for supporting the cause!

There will never be another year in America like 1968.

"It's not your right to refuse that order, and you go out there and do it because you're ordered to." 

That was how a soldier explained his actions to the Peers Commission for what would become probably one of the most infamous events of the Vietnam War,The My Lai tragedy took place on March 16th 1968.


At this time I must say, I have read several news articles that covered the events that occured on March 16th in My Lai and have found there are many different accounts of that incident. I can not personally give an opinion on what and how this happened or how the final court cases ended. I can say that the Vietnam War was a unique war and our country learned so much from that war that also is one of the most significant wars in history to change our whole government and the way we fight wars today. In addition the US is a free country and we have rights and freedoms we take for granted every day, but if it were not for our Vietnam Veterans we would not be living the american dream and have the right to report and voice our opinions on incidents such as My Lai as we can now.

Unless you have been put in that position to do what you are ordered to do by a commanding officer, you cannot judge the ones who were. As far as I am concerned the men and women who fought for our country in the Vietnam War are hero's and always will be. They went to do what they were ordered to do and they did not ask why, they fought for our country and we must continue to fight for them today. 

Here is the My Lai incident as told by a few different sources, I tried to find as many unbiased reporters as I could to be able to publish the truth of the story and have the facts told.

THIS WOULD BE THE FINAL OUTCOME: The cases were tried in military courts with juries of Army officers, which eventually dropped the charges against all of the defendants (except Calley) or acquitted them. Medina and the others who were among the killing soldiers that day went free, and only Calley was convicted of the murders of “at least 20 civilians.” Nobody was convicted of the murders of the other 400+ villagers. Calley was sentenced to life imprisonment for his crime, but, under pressure from patriotic pro-war Americans, President Nixon pardoned him within weeks of the verdict.

WHAT LED UP TO THESE TRIALS IS AS FOLLOWS: There will never be another year in America like 1968. Why that year became one of the most tumultuous periods in our history will probably never be known. It began on an ominous note when one of America’s most fervent enemies, North Korea, seized a U.S. Navy intelligence ship, named the U. S. S. Pueblo, in the Sea of Japan on January 23. They held the ship and its crew for many months and nearly started a full-scale war. In Vietnam, the massive Tet Offensive, launched by the Viet Cong against almost every major city in the south, caused massive casualties on all sides.

The assassination of Dr. Martin Luther King touched off numerous riots in dozens of American cities. Two months later, the brother of a murdered President, Senator Robert Kennedy, was assassinated in Los Angeles at the hands of an Arab fanatic. Colleges across the country were enveloped in a wave of protest and violence over the Vietnam War, which was killing hundreds of young Americans every week.

In August, the Democratic Presidential Convention in Chicago was wrecked by thousands of young people who fought the Chicago police on live TV, symbolizing the anguish of a divided nation. Richard Nixon was elected President in November and man made his first tenuous step into eternity as Apollo 10 astronauts said Christmas prayers from the dark side of the Moon. It seemed as if anything could happen that year, and then, there was My Lai.

IN FEBRUARY AND MARCH OF 1968 Charlie Company, of the 1st Battalion, 11th Brigade, suffered severe losses as a result of these traps. In one instance, while patrolling near Son My, the company stumbled upon a heavily laid minefield. As the explosions went off among them, the men tried to push forward. It was the worst thing they could have done. More explosions ripped through the helpless soldiers. Broken and severed limbs were everywhere. When it was over, 15 men were killed and wounded. By the time early March rolled around, Charlie Company had suffered 28 casualties and had yet to actually see any Viet Cong. They were seething with an anger and hatred for an enemy that, to them, was mostly invisible.

ON THE NIGHT OF MARCH 15, 1968, the men and commanders of Charlie Company gathered outside Captain Medina's "hooch". That very day, the company had a memorial service for Sgt. George Cox, a popular N.C.O. who was killed by a booby trap while on patrol near QL-1 the day before. The men were demoralized, angry and frustrated with an enemy that so far, had gotten the best of them.

Captain Medina briefed the company on the next day's assault on My Lai. What was said at this meeting and exactly what the orders were concerning the mission has remained in dispute. Some of those at the meeting say that Medina gave direct orders to kill all the civilians. "He (Medina) stated that My Lai #4 was a suspected VC stronghold and that he had orders to kill everybody that was in the village," testified Spec. 4 Max Hutson of the 2nd Platoon . Others disagreed. Pfc. Gregory Olsen remembered the briefing differently and testified to the Army C.I.D.: "Captain Medina would never have given an order to kill women and children." Whatever was said, and it is impossible to determine exactly what orders were issued, the men of Charlie Company saw the next day's mission as an opportunity to pay back the Viet Cong for their booby traps, their mine fields and the blood of the 11th Brigade.

THE EARLY MORNING OF MARCH 16, 1968 in Southern Quang Ngai was calm and cool. The men of the 1st Platoon made their final check on ammunition and supplies. They quickly boarded the waiting aircraft, filled with the expectation that the company may be "getting even" with an enemy that was mostly unseen, mysterious and hated.

BY THE AFTERNOON OF MARCH 16, 1968, while the operation was still in progress, 11th Brigade headquarters at Duc Pho knew that something drastic had happened at My Lai 4. In the following days, officers of the Americal Division met several times at Chu Lai to discuss the operation. Although inquiries were made about the 1st Battalion, 20th Infantry, no disciplinary action was taken.

ONLY ONE PERSON HAD PROOF OF WHAT HAPPENED ON MARCH 16, 1968. Only one man had the irrefutable evidence of the day's events at My Lai. That man was Ron Haeberle, an Army photographer. Ron Ridenhour, 21, arrived in Vietnam in January of 1968 and was assigned to the aviation branch of the 11th Infantry Brigade at Chu Lai. During that year, he became friends with the "grunts" (infantry foot soldiers) and often drank with the men on their off time in the clubs on the base. Ridenhour also was a member of a special unit called Long Range Reconnaissance Patrols (LRPS). Although he did not participate in the attack on My Lai, Ridenhour heard stories about what happened on March 16, including vivid descriptions of the killing. Over the next few months, the stories he heard originated from so many different sources, Ridenhour realized there must be some truth to them. When he returned to the United States after his tour of duty, he sat down in his home in Phoenix, Arizona and composed a letter that described his fears.

OVER THE SUMMER OF 1969, the Army conducted an investigation into the actions of the 1st Battalion at My Lai. Headed by a no-nonsense Army officer, Colonel William Wilson, the inquiry involved the first face-to-face interviews with the soldiers who were actually there on March 16, 1968. Colonel Wilson was a North Carolina native, a highly decorated Green Beret and combat veteran of World War II. He received a Purple Heart for war wounds and served in many combat zones throughout the years including the Congo in 1965. Among Army personnel, he was highly respected and regarded as a "soldier's soldier". He conducted his interviews in full uniform wearing a chest full of medals so that the young soldiers would feel that he was one of them, an infantryman who knew the devastating pressures of close up war.

IN AUGUST OF 1969, President Richard Nixon, on vacation in San Clemente, was told that Lt. William Calley and others would soon be charged with mass murder for the hundreds of killings at My Lai. Politically, it was a catastrophe for the Nixon White House. America was bitterly divided over the Vietnam War, Nixon was trying to drum up support for his policies and stifle the dissent at home. He also felt that the North Vietnamese would never fully negotiate if they knew that the American people were divided over the fate of the war.

"It is clear that something hideous happened at My Lai...I fear and dread what this will do to our society unless we try to understand it...For it is America that is being judged. And America will be condemned, unless we undertake some larger effort than can be had from a court martial."  President Richard Nixon.

ON DECEMBER 5, 1969, Life magazine ran Haeberle's photos of what took place in My Lai. There, for the world to see, in bright unforgiving color showed something beyond anything America had ever seen before, had happened in My Lai.

ON MARCH 29, 1971, after the longest court martial in American history and thirteen days of deliberations, Lt. William Calley was found guilty of the murder of at least twenty-two Vietnamese civilians. Calley, then 27, stood erect as he heard the verdict. He saluted the jury foreman, Colonel Clifford Ford, and returned to his seat at the defense table. His attorney, George Latimer, told the press: "It was a horrendous decision for the United States, the United States Army and for my client. Take my word for it, the boy is crushed."

To read the entire story please go to this link:  http://www.trutv.com/library/crime/notorious_murders/mass/lai/index_1.html 

March 13, 2012

Hope Is Given By Jacob With His Smile!

Jacob's Journey hurts but he continues to smile through it all!
Updates from Jacob Hill's Grandmother today bring a flood of emotions. Today I find myself feeling many different feelings as I read Jacob's Grandmother's words from her updates she has tried so hard to keep up with for all of his very caring and supportive friends and family. These feelings are so hard to write and be able to express just how strong they are, from Hope and Relief to Sadness and Hurt, but then one little smile from this very strong and brave boy takes all those emotions and pulls them together and inspiration takes over and you just know he is going to get through these sessions and be perfectly healthy and happy!

I still feel the same as I felt the first time I wrote about Jacob and that is that I can not even begin to know what he and his family are going through and I would not try to express those emotions, I am going to let his Grandmother tell his story in her words with her updates as only a Grandmother can tell them.

Jacob's Journey, updates by his Grandmother Lynda Pray Phelps:
Jacob update - Shannon and Jacob had a pretty rough day and are pretty worn out so here's all the details I know. Jacob developed a deep dry cough this past week. Most likely a side effect of the HU3F8. After being heavily sedated and the infusion started, Jacob began to cough uncontrollably. They were working to get the coughing under control so that he could breathe and his heart rate went over 200. He couldn't talk and tell them about the pain, because he couldn't stop coughing so they had to guess that it was the pain causing the rapid heart rate and gave him dilaudid. They used up the limit on the benedryl and codeine cough medicine and finally after the infusion he was able to rest a little. Since this is a new treatment, they weren't sure what the side effects would be - Coughing apparently is one of them. Round 2 down - 22 more to go ! Just sitting at home waiting on news from Shannon about Jacob. The second infusion is about to start. She said he is still having leg pain from last week and he has a deep cough that I can hear in the background.

Last night, I was sitting and thinking about when this all started. Just an ordinary day until I got a call from Shannon saying that Jacob said his tummy hurt and she found a lump. A few hours later our lives would change forever when at Children's Hospital a doctor comes into the room and says that the CT showed tumors that were likely neuroblastoma. Neuroblastoma? What is it - Cancer? No No - it couldn't be cancer - Not one my grandkids - Not healthy, happy, sweet little Jacob who loves dinosaurs and robots. Cancer is something that other people's grandkids get - People you just read about, not anyone you know and certainly not that little boy you love so much. Suddenly we found ourselves looking up medical terms and searching treatment options and knowing that life would never be ordinary again.

Fast forward 18 months. You see your daughter going through a hell that nobody deserves. You find yourselves standing countless days by the bedside of a very very sick little boy. You watch helplessly as he recoveries from more major surgeries in one year than most people have in a lifetime. You find yourself almost wishing it was a cancer that had better odds and less lethal treatments - you're willing to trade neuroblastoma for another cancer if it will only give him a better chance with less pain. And you meet people who share your story - a grandmother from New Jersey with a little granddaughter with sarcoma - still fighting bravely. A little girl with leukemia named Penelope who liked to play with Jacob in the playroom and had a baby brother during her treatment. - Grandparent's of 5 year old Dylan who shared Jacob's first room at Sloan in NYC.  He had just been diagnosed with ALL leukemia - There was a lot of brave talk about how they were gonna "kick cancer's butt" - Yeah - I said those words too. We are both a little more humble now.

Cherish the ordinary - never ever take ordinary for granted.

If you would like to follow Jacob's Journey you can by visiting his Facebook page at:  http://www.facebook.com/JacobHillsJourney?ref=ts 

Please visit his blog for many more photos and updates at:  http://www.jacobhillsjourney.blogspot.com/ 

March 12, 2012

Prayers For Emma!

Little Emma was diagnosed with Fanconi anemia at the age of 3.

Please visit and "like" Emma's Facebook page that was created in an effort to reach out to the community and pray for a special Little Girl, Emma. She is battling Fanconi Anemia. You can show your support and caring for Emma by becoming her new friend on Facebook, she would enjoy your friendship
Visit Emma's Facebook Page:
http://www.facebook.com/prayersforemma?sk=info 


Little Emma was diagnosed with Fanconi anemia at the age of 3. Fanconi anemia is a rare bone marrow disease that leads to many cancers and life threatening health problems. So far Emma has stayed cancer free, but this warrior has been through so much. She has had countless rounds of chemotherapy, bone marrow aspirations, a bone marrow transplant, and very long hospital stays. And her fight still isn’t over. Fanconi anemia doesn’t have a cure yet and is very low on funds for research. She is now 7 years old and making amazing strides every day. She just got back from a wonderful make a wish trip to Disney and is not letting this horrible monster get in her way of just being a kid. Emma is a Fanconi Anemia warrior, and every day I pray that one day she will become a Fanconi anemia survivor.

Emma loves receiving letters! Just knowing others care about her will give her a peace of mind right now. 

Also, please remember she has a very jealous 3 year old brother Dalton, who would love to receive letters too! Dalton often feels left out in the craziness of Emma's sickness.

She loves hello kitty, so feel free to include that in the letter! Please include your address, Emma and Dalton would love to write back.

Here's the address:
Emma Routh or Dalton Routh
11176 Country Road 4345
Larue Tx. 75770

Email:

March 11, 2012

Speak Now gives a voice to young women!

Speak Now needs your help with their April 2012 cause!


Their Mission...

“Speak now gives a voice to young women who remain silent in the fear of rejection”

The Ellie Life has branched it's wings to send love to these lovely young women we speak of above. 

Spreading it's wings, The Ellie Life speaks to them on love, life, coping, heartache, drama, & dreams. 

Mostly though, to give them a voice. 

HOW YOU CAN HELP THE SPEAK NOW CAUSE...

Coming April 2012, Speak Now will go global with the help of sponsors and supporters. 

Like us on Facebook. 


The first 1,000 Facebook likes will be worth 10cents each. 
This money will go to San Diego's emergency teen shelter. 


After our first 1,000 likes....

Speak Now will donate 10cents to our goal of owning and operating a safe house for teens to come and embrace it's offerings. To come create, endure, & feel loved. 

I believe that every teen has a story. 
Please help them be heard.

For more information on the cause, private donations, or aiding in the future of Speak Now.

Contact here:

Today Is My Grand Daughter's First Birthday!

A year ago today my granddaughter was born at 9:53pm!


I can not believe it has been a year since my grand daughter Abbygail was born. I remember that night very well, my daughter Ashley had to go to a hospital about two hours away when she went into labor. I had the flu and was very sick with a bad cough and fever. I wanted to be there so bad but there was no way I was going to get past the doctors being as sick as I was. Ashley and Alan were so good about keeping me updated with her progress by text messages, emails and of course a phone call any chance they got. I couldn't even keep my grandson AJ while they were at the hospital because I didn't want him to get sick and then pass it on to the new baby or his Mommy & Daddy, so it was a very long lonely night. I remember updating my status on Facebook constantly and posting updates to my blog just to keep busy so I would go crazy waiting for the next update.

After a couple of hours of updates and feeling terribly sick and anxious all at the same time I realized I had not heard from Ashley or Alan in over an hour, I tried to call them and no answer. So panic sets in and my anxiety level goes up as well as my fever, I start to cough and then can't stop, I feel horrible and can not find out what is going on at the hospital. Finally after another horrible hour of waiting I get a text message that tells me "She's here" as my daughter said it in the text message. I was so happy and so relieved to know all was good, even as I write this tonight I can still feel those emotions and have tears in my eyes. Here we are today a year later my darling little granddaughter Abbygail Lyla is a year old, wow it is so amazing and Ashley & Alan are wonderful parents to Abby and my grandson AJ who will be four in July. I could not ask for anything more and I would not change a thing. I am so blessed to have them in my life, they are my world and I love them all so much!

Congratulations! It's your Abby's first birthday!


Can you believe that an entire year has passed since the birth of your child? And what an incredible journey it has been! As your child reaches his first birthday, you may reflect on the year that has passed or even back to when you were trying to conceive, or first found out you were pregnant. You may remember the first fluttering in your tummy, those first little kicks that soon turned into power kicks, and then your first labor pains. You may think back to the car ride home from the hospital and those first few nights at home, and all those diapers!

Your child's first birthday marks their graduation from infancy to toddlerhood. Over the past year, your baby has reached so many impressive milestones with your love and care. You, your partner, your baby's siblings and other caregivers should all be so proud! The upcoming year will be just as exciting. Among the developments to come, your child will begin to interact more with other children their age and their vocabulary will begin to increase at an amazing rate, reaching up to about 50 spoken words in the next 12 months!

Babies born on Friday, March 11, 2011

Were likely conceived 6/18/2010
And are 366 days old!

Fun Birthday Facts:

Zodiac Sign: Pisces
Birthstone: Aquamarine
Birth Flower: Daffodil or Jonquil
Chinese Zodiac: The White Metal Rabbit

Half birthday: September 9

Babies born on 3/11/2011 will start kindergarten in 2016,
be old enough to drive a car in 2027, finish high school in 2029,
and will graduate from college with the class of 2033, give or take a year.
Can you imagine?

March 8, 2012

Today Is International Women's Day 2012!

International Women's Day is on March 8!


 Hundreds of events occur not just on this day but throughout March to mark the economic, political and social achievements of women.

Organisations, governments and women's groups around the world choose different themes each year that reflect global and local gender issues.

Some years have seen global IWD themes honoured around the world, while in other years groups have preferred to 'localise' their own themes to make them more specific and relevant.

So while many people may think there is one global theme each year, this is not always correct. It is completely up to each country and group as to what appropriate theme they select.


For information about International Women's Day visit www.internationalwomensday.com

March Is Women's History Month!

Congressional Resolution Designating the Month of March "Women's History Month"


The public celebration of women's history in this country began in 1978 as "Women's History Week" in Sonoma County, California. The week including March 8, International Women's Day, was selected. In 1981, Sen. Orrin Hatch (R-Utah) and Rep. Barbara Mikulski (D-Md.) co-sponsored a joint Congressional resolution proclaiming a national Women's History Week. In 1987, Congress expanded the celebration to a month, and March was declared Women's History Month.

Whereas American women of every race, class and ethnic background have made historic contributions to the growth and strength of our Nation in countless recorded and unrecorded ways;

Whereas American women have played and continue to play a critical economic, cultural, and social role in every sphere of the life of the Nation by constituting a significant portion of the labor force working inside and outside of the home;

Whereas American women were have played a unique role throughout the history of the Nation by providing the majority of the volunteer labor force of the Nation;

Whereas American women were particularly important in the establishment of early charitable, philanthropic, and cultural institutions in our Nation;

Whereas American women of every race, class, and ethnic background served as early leaders in the forefront of every major progressive social change movement;

Whereas American women have been leaders, not only in securing their own rights of suffrage and equal opportunity, but also in the abolitionist movement, the emancipation movement, the industrial labor movement, the civil rights movement, and other movements, especially the peace movement, which create a more fair and just society for all; and

Whereas despite these contributions, the role of American women in history has been consistently overlooked and undervalued, in the literature, teaching and study of American History;

Now, therefore, be it resolved by the Senate and House of Representatives of the United States of America in Congress assembled, that March is designated as "Women's History Month." The President is authorized and requested to issue a proclamation for each of these months, calling upon the people of the United States to observe those months with appropriate programs, ceremonies and activities.

March 7, 2012

Sweet PoTatum Accessories Is Helping Jacob's Fight!

Kristy's profits are going toward Jacob Hill's cancer fund!


100% of Sweet PoTatum Accessories' proceeds are to help Jacob fight Neuroblastoma. 

Kristy is the creator behind Sweet PoTatum Accessories. Sweet PoTatum Accessories are custom handmade accessories using polymer clay. Please visit her Facebook page for more information at: http://www.facebook.com/sweetpotatum.

How Do I Order? You can find most of my bow centers in my shop here. If you are looking for something you do not see there, feel free to email me at: sweetpotatum@gmail.com.

Custom Items: I love creating custom orders. If you are looking for something specific, feel free to contact me. I will then send you a price quote.

How Long Will My Order Take? I work on orders on a first come first serve basis based on payment date. My typical turn around is 7-21 from date of purchase. If you need an item by a particular time, please email me ahead of time. Please note: I DO NOT work on orders unless they are paid for. While I have some items ready to ship, most items are created after payment. Custom items (items I have not created in the past) take the longest to create, so please keep that in mind. 

Shipping Info: All of my US orders are shipped USPS. Bow center shipping is $3.00 for the first item and .10 each additional. Ornaments/Tags are $3.50 for the 1st item and .50 each additional.

Please note: My shipping prices are for shipping AND handling. You are not just paying the cost of shipping alone. Unfortunately, the cost of materials has to be factored in as well. (I do not ship through paypal, I take the package directly to the post office. I have found that works best for me and my packages. AKA, less people handling the packages=less chances of breaking.) International. Any customs duties, taxes, fees, etc that are charged upon delivery are your responsibility and are not reflected in my shipping charges. 

Refunds & Exchanges: I try my best to package all of my items securely to prevent item damage. I package every individually in bubble wrap.

If for some reason the item(s) arrive damaged, please contact me asap via e-mail (sweetpotatum@gmail.com) or my contact tab and I'll gladly find a solution. 

Due to the custom nature of my items, I do not accept returns. 

Please note, I am not responsible for any shipping damages caused by the post office while in transit. (ie...the box looks like it has been stomped on) 

Misc Info: Polymer Clay is very strong, but these are not toys and will break if not handled properly. If you are a bow maker, please make sure you secure them really well to the bow and keep in mind that the post office is not kind to our packages. 


I love the challenge of creating new ideas, please feel free to contact me with yours.

Current turnaround time is 2-3 weeks from payment. 

A note from Jacob...
Hello to all my family, friends and wellwishers. My name is Jacob Hill. I'm 3 years old. I live with my mom and three sisters in Rockwall, Texas. I am a very energetic and curious little boy. I love dinosaurs, playing with my sisters, riding my scooter outside and everything Spiderman. I have a fearless, sweet and loving nature. I am surrounded by tremendous amounts of love and support from... all of my family and friends as I continue my fight against Stage IV High Risk Neuroblastoma.

To follow Jacob's journey and show your support as well as get updates as to how he is doing please visit his Facebook page at: http://www.facebook.com/JacobHillsJourney

March 6, 2012

Vietnam Veteran's Needs Help Fulfilling Last Wish!

Vietnam Veteran Delmar Lilly wants to go home!
Posted on Facebook by the Facebook group "Vietnam Veterans" on March 6, 2012.

I think it is important to post this: 

An open letter to ANYONE that can help.

A dear friend to many and a Nitro High Graduate 1967, Nitro, WV, is losing his battle with lung cancer as I write. He and his family live in Shallotte, North Carolina.

He was at Duke University, however, he now is at the Mayo Clinic, in Jacksonville, Florida. There is nothing more that the doctors can do for him, and he wants to go home to die. Returning home in their RV is out of the question. 

They have located an ambulance service that will drive him home for $3,000.00. Jay Rockefeller's office in Washington were asked for help and we were told, the military would airlift him home, HOWEVER, the government would need to be paid $6,000.00 first.

I told everyone that he is a Vietnam Veteran, and the very least our country can do for him as a last ditch effort to thank him for his service, is to get him home to die.

ANY donations would be appreciated by Delmar and his family to get him HOME.

Checks should be made payable to Brenda Lilly
Post Office Box 3288, Shallotte, North Carolina 28459

For more information on how you can help please contact:
Pat Sharp or The Mayo Clinic in Jacksonville, re: Delmar Lilly.

March 4, 2012

A Special Memory Before Daughter Leaves For US Army!

My sister & niece celebrate leaving for the Army!

It all started a few months ago when my niece Katie decided to join the US Army. After going through all the testing and evaluations she found out she had passed everything and is a Soldier. She leaves for Basic Training this August and my sister Susie has been having trouble with the realization of the fact that her daughter is not only leaving home but is going into the Army, which of course any mother would have these feelings.

Susie is very proud of Katie as we all are, she is an amazing young woman at the age of 19 who knows what she wants to do and is going to give 100% to serving our country and being the best she be. 

Katie is not the first one in our family to join the Army but is the first woman to do so. My father joined the Army in 1964 and served in the Vietnam War as a Platoon Sgt. in Special Forces in 1968 where he received the Bronze Star and many medals for his excellent service.

Katie's father Kenny was also in the Army right around the time Katie was born and served in did a tour in Germany and was deployed to Los Angeles to protect the community and citizens there during the LA Riots.

Today Katie decided to cut her hair so she would have plenty of time to get used to her new "Army" look. Of course she looks beautiful as she always has but what makes her even more beautiful is she and her mother have decided to donate her very long, healthy brown locks to "Locks for Love", what a wonderful way to make a good memory of this life changing event their family is gearing up for.

WHAT IS LOCKS OF LOVE?

Locks of Love is a public non-profit organization that provides hairpieces to financially disadvantaged children in the United States and Canada under age 21 suffering from long-term medical hair loss from any diagnosis. We meet a unique need for children by using donated hair to create the highest quality hair prosthetics. Most of the children helped by Locks of Love have lost their hair due to a medical condition called alopecia areata, which has no known cause or cure. The prostheses we provide help to restore their self-esteem and their confidence, enabling them to face the world and their peers.

Mission Statement
Our mission is to return a sense of self, confidence and normalcy to children suffering from hair loss by utilizing donated ponytails to provide the highest quality hair prosthetics to financially disadvantaged children. The children receive hair prostheses free of charge or on a sliding scale, based on financial need.

For information on how you can donate to Locks of Love see: http://www.locksoflove.org/

Endometriosis Is Real, Painful & We Need A Cure Now!

March is Endometriosis Awareness Month!

Endometriosis is a disease occurring very frequently in women of reproductive age, its prevalence being higher than breast cancer. It is also the most misdiagnosed disease.

Endometriosis is the abnormal growth of cells (endometrial cells) similar to those that form the inside of the uterus, but in a location outside of the uterus. Endometrial cells are cells that are shed each month during menstruation. The cells of endometriosis attach themselves to tissue outside the uterus and are called endometriosis implants. These implants are most commonly found on the ovaries, the Fallopian tubes, outer surfaces of the uterus or intestines, and on the surface lining of the pelvic cavity. 

They can also be found in the vagina, cervix, and bladder, although less commonly than other locations in the pelvis. Rarely, endometriosis implants can occur outside the pelvis, on the liver, in old surgery scars, and even in or around the lung or brain. Endometrial implants, while they can cause problems, are benign (not cancerous).

Who is affected by endometriosis?
Endometriosis affects women in their reproductive years. The exact prevalence of endometriosis is not known, since many women may have the condition and have no symptoms. Endometriosis is estimated to affect over one million women (estimates range from 3% to 18% of women) in the United States. It is one of the leading causes of pelvic pain and reasons for laparoscopic surgery and hysterectomy in this country. Estimates suggest that between 20% to 50% of women being treated for infertility have endometriosis, and up to 80% of women with chronic pelvic pain may be affected.

While most cases of endometriosis are diagnosed in women aged around 25-35 years, endometriosis has been reported in girls as young as 11 years of age. Endometriosis is rare in postmenopausal women. Endometriosis is more commonly found in white women as compared with African American and Asian women. Studies further suggest that endometriosis is most common in taller, thin women with a low body mass index (BMI). Delaying pregnancy until an older age is also believed to increase the risk of developing endometriosis.

What causes endometriosis?
The cause of endometriosis is unknown. One theory is that the endometrial tissue is deposited in unusual locations by the backing up of menstrual flow into the Fallopian tubes and the pelvic and abdominal cavity during menstruation (termed retrograde menstruation). The cause of retrograde menstruation is not clearly understood. But retrograde menstruation cannot be the sole cause of endometriosis. Many women have retrograde menstruation in varying degrees, yet not all of them develop endometriosis.

Another possibility is that areas lining the pelvic organs possess primitive cells that are able to grow into other forms of tissue, such as endometrial cells. (This process is termed coelomic metaplasia.)

It is also likely that direct transfer of endometrial tissues during surgery may be responsible for the endometriosis implants sometimes seen in surgical scars (for example, episiotomy or Cesarean section scars). Transfer of endometrial cells via the bloodstream or lymphatic system is the most likely explanation for the rare cases of endometriosis that develop in the brain and other organs distant from the pelvis.

Finally, some studies have shown alternations in the immune response in women with endometriosis, which may affect the body’s natural ability to recognize and destroy any misdirected growth of endometrial tissue.

http://blogs.mcgill.ca/gradlife/2012/03/01/endometriosis-awareness/

March 2, 2012

Happy Birthday, Dr. Seuss!

Children’s Author, Dr. Seuss Turns 108!

Today marks the 108th birthday of Theodor Seuss Geisel more famously known as Dr. Seuss.

A wonderful children’s author, Dr. Seuss may have written in a type of English that didn’t always make perfect sense, but his universal appeal is unmistakeable. His 46 children’s books have been loved by pretty much any child and adult who picked one up. Today the good doctor would have turned 108. He passed away in 1991 after a battle with throat cancer and years of poor health.

His books are packed with imaginative characters and playful rhymes, some of his most celebrated titles include best-sellers like Green Eggs and Ham, The Cat in the Hat, One Fish Two Fish Red Fish Blue Fish, Horton Hatches the Egg, Horton Hears a Who!, and How the Grinch Stole Christmas!

Dr. Seuss had a way with words that is for sure but his words had a way of changing his reader's lives and inspiring, encouraging and helping fans of all ages to feel good about themselves as they grew up reading his wonderful quotes. Here is a collage of 30 Dr. Seuss quotes that can change your life and a list of seven interesting facts about Dr. Seuss you probably did not know, enjoy!

7. Born Theodor Seuss Geisel in Springfield, Massachusetts on March 2, 1904, where the future bestseller’s German immigrant father worked in a brewery until it was closed during the Prohibition. As an adult, Dr. Seuss made his childhood neighborhood a household name in his first children's book, And To Think That I Saw It On Mulberry Street.

6. The literary legend’s pen name was born from an illicit drinking session! Geisel studied at the prestigious Dartmouth College and first tried his hand at journalism in the humor magazine Dartmouth Jack-O Lantern, where he rose to the ranks of Editor-In-Chief, until he got busted for drinking gin with some classmates in his room and was banned from all extracurricular activities. Determined not to give up his creative comical outlet, Ted began writing under the pen name, Seuss, which was both his middle name and his mother’s maiden name. Trying to fulfill his dad’s dream of him being a college professor, Ted traveled to England to study at Oxford University but quickly grew bored of the pomp and circumstance and opted instead to travel around Europe with pretty fellow student Helen Palmer, who went on to become his first wife. The couple was married in 1927 and Ted returned to the U.S., with a new bride but without a degree from Oxford.

5. After publishing humorous articles for magazines such as Vanity Fair and Life, Geisel’s first career of creating advertising campaigns for Standard Oil, NBC and General Electric lasted 15 years until the onset of World War II shifted his focus to bigger issues and he began contributing weekly political cartoons to liberal publication PM magazine. He then joined the Army in 1943 as a Captain and Commander of the Cartoon Department of the First Motion Picture Unit, where he fell in love with the art of animation, developing a series of training films featuring a character called Private Snafu.

4. A collection of children's sayings called Boners led to his big break in children’s literature with the eventual publication of And To Think That I Saw It On Mulberry Street, after it was rejected a whopping 27 times by Vanguard Press. Geisel and Helen moved to La Jolla, California, and he penned If I Ran the Zoo, Horton Hears a Who! and If I Ran the Circus. Next came the title that would mould the dreams of generations of children to come, when Houghton Mifflin asked Seuss to write and illustrate a book with just 225 "new-reader" vocabulary words and challenged him to "bring back a book children can't put down,” and The Cat In The Hat was born in 1957 to phenomenal success and rave reviews. It was closely followed by How The Grinch Stole Christmas and Green Eggs and Ham, and his latest to make it to the big screen,The Lorax in 1971.

3. Dr. Seuss’ signature style is based on anapestic tetrameter, a poetic meter used by many poets. It consists of four rhythmic units each composed of two weak beats followed by one strong beat, and often the first weak syllable is omitted, or an additional weak syllable is added at the end. A classic example is found in the story, Yertle The Turtle. "And today the Great Yertle, that Marvelous he “Is King of the Mud. That is all he can see.” When it comes to his fabulous illustrations, Dr Seuss’ characters such as the Grinch and the Cat are known for their familiar round and droopy shapes, as are his buildings which melt and bend around free-standing staircases, ramps and platforms.

2. Geisel’s life story wasn’t all about brightly drawn pictures and rhyming verses, it was also marred by tragedy and scandal. After fighting a long battle with cancer and the emotional trauma of her husband’s affair with Audrey Stone Dimond, his wife Helen committed suicide in October 1967, her ‘mourning husband’ married his former mistress six months later. Despite two marriages and a bibliography full of children’s classics, Dr. Seuss never had children of his own, instead living by the motto, "You have 'em; I'll entertain 'em." After several years of bad health, Seuss died of throat cancer on September 24, 1991 at age 81. He was cremated in La Jolla and Dr. Seuss Enterprises was left in the careful hands of ‘Mrs. Seuss,’ Audrey, including the rights to 44 books that had been translated into 15 different languages and sold more than 200 million copies. During his career, he was honored with two Academy Awards, two Emmys, a Peabody and the Pulitzer Prize.

1. Dr. Seuss’ legacy continues to live on in countless modern-day versions of his work, from eleven TV speicals, the Broadway musicals Seussical and The Grinch, to Hollywood blockbusters, The Cat in the Hat with Mike Myers, and How The Grinch Stole Christmas with Jim Carrey, and CGI animated works Horton Hears A Who, and opening Friday, The Lorax. Fans who want to jump into Dr. Seuss’ fantasy world feet-first can visit Seuss Landing at the Island Of Adventures theme park in Orlando, Florida.

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